Nepal | August 13, 2020

Family in dire need of financial support to treat their daughter suffering from rare ‘Guillain-Barre Syndrome’

Mausam Shah Nepali
Share Now:

KATHMANDU: Just like many girls her age, Puja Dangal, 19, a Kavre native, was happily pursuing her studies in Kathmandu until the diagnosis of Guillain Barre Syndrome, a rare form of neurological disorder, came crashing into her life.

On experiencing extreme fatigue, lack of appetite and persistent diarrhoea, Puja was rushed to Civil Hospital in New Baneshwor on Wednesday. From there, doctors referred her to Annuparna Neuro Hospital after she developed further complications related to her ailment.

A thorough check-up was done on Thursday following which the doctors revealed that the patient was suffering from Guillain Barre Syndrome, a rare and serious autoimmune disorder in which the immune system attacks healthy nerve cells in the peripheral nervous system leading to weakness, numbness, and tingling sensation, eventually causing paralysis.

With the beginning of treatment, Puja’s family is now faced with financial constraints to meet their daughter’s highly expensive medical treatment.

According to neurologist Avinash Chandra, who is treating the patient, “In these cases, the young patients sometimes recover on their own. So, we have kept Puja under observation. However, if the patient develops complications and breathing difficulties, then we will have to put her in ventilator and treat her.”

We cannot say anything at this point. If the patient responds to treatment, she would need long physiotherapy to get back to normal life. However, in the worst-case scenario, the patient becomes paralysed, Dr Chandra added.

Although we managed to spend around 1,00,000 in early screening, we do not have sufficient funds to afford her treatment, said patient’s father Kedar Dangal, a local contractor in the village.

“The cost of one injection (plasmapheresis and immunoglobulin Ivig) is Rs 18,000 and she requires five doses a day for five days. The hospital has asked us to manage around Rs 1 million for her treatment. I don’t know how I’m going to manage all these expenses with my little income,” Kedar Dangal father of two lamented.

The world is facing coronavirus crisis, and yet I do not have any other option but to appeal in front of you all for generous support for the treatment of my daughter, who is battling with a rare form of disease, Dangal shared.

“In case anyone is willing to extend financial support to our family, they can deposit the money in Mega Bank Ltd, Durbar Marg branch, A/C Name: Kedar Bahadur Dangal, account no: 0010050116999,” said Tara Dangal, the patient’s mother.

Puja Dangal, a student of Bachelor of Business Studies (BBS), second year at KNK International College in New Baneshwor, has been living in a rented room at Kageshwori Manohara in Kathmandu.

Due to lack of provision for proper healthcare facilities, health insurance included, a majority of patients suffering from terminal illnesses, spinal injuries, kidney ailments, among other chronic diseases, cannot afford to meet expensive medical bills in Nepal.

Follow The Himalayan Times on Twitter and Facebook

Recommended Stories:

More from The Himalayan Times:

Europa League, Shakhtar Donetsk

Four-goal Shakhtar set up Europa semi against Inter

GELSENKIRCHEN: Shakhtar Donetsk booked a clash with Inter Milan in the Europa League semi-finals after goals from Brazilians Junior Moraes, Taison, Alan Patrick and Dodo gave them a 4-1 win over FC Basel in a one-sided last-eight clash on Tuesday. The Ukrainian champions will take on In Read More...

Woman, daughter held in Gongabu murder case

Kathmandu, August 11 Nepal Police today made public the woman, who was arrested on the charge of murdering a man in Gongabu. The headless body of Krishna Bahadur Bohora, 45, of Rolpa was found inside a suitcase, around 100meters away from her rented room at Ganesthan, Gongabu on Sunday. Pol Read More...

COVID-19 likely to persist until India gets rid of it: Health Minister

Kathmandu, August 11 Minister of Health and Population Bhanubhakta Dhakal has said the risk of COVID-19 will remain in Nepal until the pandemic is totally contained in India. Addressing the 61st Anniversary Programme of Paropakar Maternity and Gynaecology Hospital here today, he argued that as Read More...

Bajura village cut off from rest of Nepal

BAJURA, AUGUST 11 Ajaytodki village in Ward 2 of Gaumul Rural Municipality in Bajura has been cut-off from the rest of the country for the past two days after the swollen Budhiganga River swept away a bailey bridge at Jadanga along the Sanfe-Martadi road. The sweeping away of the bridge has disco Read More...

Informal, salaried workers hit hard by COVID-19 in Kathmandu valley: Study

Kathmandu, August 11 Nearly 29 per cent of the respondents interviewed by Kathmandu Metropolitan City in a survey on ‘Impact of COVID-19 on Livelihood’ said their families were stressed due to the uncertain future facing them in the metropolis. Families living in rented rooms or houses sai Read More...

Bharatpur Hospital

Human resource crunch hits COVID lab

CHITWAN, AUGUST 11 Bharatpur COVID-19 laboratory built in April in a short period of time, is struggling to perform. Shortage of human resources has marred the laboratory’s service delivery. The lab established under Bharatpur Hospital has not made any visible progress compared to its initia Read More...

COVID spreads at community level in Rautahat

Rautahat, August 11 COVID-19 infection has been spreading at the community level in Rautahat. As many as 11 persons, including a youth leader, a petrol pump owner and an assistant health worker of Pothiyahi health post, have tested positive for the virus in Garuda Municipality today. It is Read More...

Democrat Joe Biden chooses US Senator Kamala Harris for White House running mate

Democratic presidential candidate Joe Biden on Tuesday picked Senator Kamala Harris as his choice for vice president, making her the first Black woman on a major-party US presidential ticket and giving him a partner well prepared to go on the attack against Republican President Donald Trump. Read More...