Nepal | August 11, 2020

Family in dire need of financial support to treat their daughter suffering from rare ‘Guillain-Barre Syndrome’

Mausam Shah Nepali
Share Now:

KATHMANDU: Just like many girls her age, Puja Dangal, 19, a Kavre native, was happily pursuing her studies in Kathmandu until the diagnosis of Guillain Barre Syndrome, a rare form of neurological disorder, came crashing into her life.

On experiencing extreme fatigue, lack of appetite and persistent diarrhoea, Puja was rushed to Civil Hospital in New Baneshwor on Wednesday. From there, doctors referred her to Annuparna Neuro Hospital after she developed further complications related to her ailment.

A thorough check-up was done on Thursday following which the doctors revealed that the patient was suffering from Guillain Barre Syndrome, a rare and serious autoimmune disorder in which the immune system attacks healthy nerve cells in the peripheral nervous system leading to weakness, numbness, and tingling sensation, eventually causing paralysis.

With the beginning of treatment, Puja’s family is now faced with financial constraints to meet their daughter’s highly expensive medical treatment.

According to neurologist Avinash Chandra, who is treating the patient, “In these cases, the young patients sometimes recover on their own. So, we have kept Puja under observation. However, if the patient develops complications and breathing difficulties, then we will have to put her in ventilator and treat her.”

We cannot say anything at this point. If the patient responds to treatment, she would need long physiotherapy to get back to normal life. However, in the worst-case scenario, the patient becomes paralysed, Dr Chandra added.

Although we managed to spend around 1,00,000 in early screening, we do not have sufficient funds to afford her treatment, said patient’s father Kedar Dangal, a local contractor in the village.

“The cost of one injection (plasmapheresis and immunoglobulin Ivig) is Rs 18,000 and she requires five doses a day for five days. The hospital has asked us to manage around Rs 1 million for her treatment. I don’t know how I’m going to manage all these expenses with my little income,” Kedar Dangal father of two lamented.

The world is facing coronavirus crisis, and yet I do not have any other option but to appeal in front of you all for generous support for the treatment of my daughter, who is battling with a rare form of disease, Dangal shared.

“In case anyone is willing to extend financial support to our family, they can deposit the money in Mega Bank Ltd, Durbar Marg branch, A/C Name: Kedar Bahadur Dangal, account no: 0010050116999,” said Tara Dangal, the patient’s mother.

Puja Dangal, a student of Bachelor of Business Studies (BBS), second year at KNK International College in New Baneshwor, has been living in a rented room at Kageshwori Manohara in Kathmandu.

Due to lack of provision for proper healthcare facilities, health insurance included, a majority of patients suffering from terminal illnesses, spinal injuries, kidney ailments, among other chronic diseases, cannot afford to meet expensive medical bills in Nepal.

Follow The Himalayan Times on Twitter and Facebook

Recommended Stories:

More from The Himalayan Times:

Opinion: Remain connected through the umbilical cord

Separating Sita from Ram, Janakpur from Ayodhya, and Kathmandu from Kashi is tantamount to severing the body from the soul In a stunning claim, Nepali Prime Minister KP Sharma Oli on July 13 said that Ayodhya, the ancient city believed by millions of Hindus to be the birthplace of Lord Ram, Read More...

South Asian Gastronomy Association launches 'Savestreetfood' campaign across SAARC countries amid COVID-19 crisis

KATHMANDU: The South Asian Association for Gastronomy (SAAG) has launched a campaign to 'Savestreetfood' across India, Sri Lanka, Nepal, Bangladesh, among others, in a bid to save food vendors affected by the ongoing COVID-19 pandemic. SAAG, comprising of hospitality industry professionals, food Read More...

Three kids left stranded after mother goes missing in Doti  

A mother of three children has gone missing after her terminally ill husband passed away few months ago at Nara gaun in Sayal Rural Municipality-6 of Doti district. According to a local Deepak Bahadur Khati, the father of the three kids, Baji Khati, died some fifteen months ago. Now the mothe Read More...

Isolation ward set up

RAJBIRAJ, AUGUST 9 With the rise of COVID infection, Tilathi Koiladi Rural Municipality has brought an isolation ward with 100 beds into operation in the rural municipality of Saptari district. As many as 28 infected people are receiving treatment in the new isolation ward set up at Public Hig Read More...

Bank sealed after employees contract virus

LAHAN, AUGUST 9 Global IME Bank here has been sealed after an employee tested positive for coronavirus. Other employees at the bank have been kept in quarantine. The bank employee, a 34-year-old from Mahottari district, tested positive for COVID-19. Lahan Municipality’s health section Chi Read More...

Manang Village, Marshyangdi river, Gangapurna lake

COVID fear looms large with more people entering Manang

MANANG, AUGUST 9 The number of workers and employees entering Manang has increased after the nationwide lockdown against COVID-19 pandemic imposed since the night of July 21 was lifted. With increase in people’s movement leading to subsequent rise in infection rate and the death toll as well Read More...


Rural municipality in Jhapa imposes lockdown

JHAPA, AUGUST 9 Gauriganj Rural Municipality in Jhapa district has decided to impose lockdown for four days to curb the spread of COVID-19. A meeting of Gauriganj Rural Municipality Corona Emergency Work Operation Centre today took the decision to impose the lockdown from August 14 to 17. W Read More...

‘Ruling party lawmakers against provincial govt’

HETAUDA, AUGUST 9 Bagmati Province Chief Minister Dormani Poudel today claimed that lawmakers of the Provincial Assembly from his party were hatching a conspiracy against his government. Inaugurating Fifth Makawanpur District Assembly meeting of District Coordination Committee in Hetauda, CM P Read More...